Friday was our day to go back to Lacrosse. Kayla and Kalissa were here to do childcare so I could go with Kramer. Once we get the plans in place, I won’t be going every time. For now, I need to go so I feel comfortable with him going without me AND I’m the caregiver here at home so I need to know what side affects to look for.
These appointments were set up before Kramer had the surgery. The appointments were to see the radiologist and the oncology docs.
As we drove we were both thinking and dreading the upcoming portion of this cancer journey. Kramer will be making the trips every day for chemo. It’s an hour and 45 minutes drive time. We always leave 2 hours before any appointment in case we need to a bathroom or fuel stop. UGH…4 hours a day in a car. Well…not doing it would be WAY worse than doing it….so here we go.
First radiology. We had a cool doctor who like to illustrate as he talked. Check out how he used the examination table.
Here’s the notes.This is what we took away from this appointment:
Radiation is a fine balance between keeping the healthy cells living and killing the bad ones. The doctor feels pretty confident about Kramer’s case. He states that he believes this is curable.
On the 15th we go back to the doctors. Kramer will get a mapping for his radiation and a port for easy access for chemotherapy.
Then on the 25th chemotherapy and radiation start. Radiation will be 33 treatment…every weekday for just over six weeks.
Next was the oncology doc. He’s in charge of the chemo portion of the treatment.
Here we learned more about the types and lengths of chemotherapy Kramer would get. He will be getting chemotherapy at the same time the radiation happens. Monday will be chemo and radiation, the rest of the days only radiation. Radiation days will be quick with only a half hour for the whole process. Chemo days are longer. It will be 3-4 hours for the chemo treatment only. He is getting a low dose of chemo through the duration of radiation. The nurse said that she expects that day 2 & 3 after treatment will be the days when Kramer feels the worst.
After radiation is finished he’ll get two larger doses of chemo. He likely won’t lose his hair until then. The doctor referred to this as clean up chemo.
There was no focus on this but we were also told that he might have to have chemo every other week for a year after that….we were told we’d see how that goes when the time comes. If that’s so, we’re hoping that this could be done at one of the local hospitals. Now, we are unable to make use of the local options as he needs radiation and radiation is not available locally.
There was a TON of information in each of the appointments. A TON. It seemed like a lot to take in but I’m sure by the time a few weeks go by, we’ll be old hats at this. This is one of those things that we’ll learn WAY more about than we ever wanted to know.
Originally we were suppose to see the surgeon to but being he saw him on Tuesday, that appointment was cancelled.
It was kind of depressing news but we talked a lot on the way home. It helped both of us. We say this time and time again. We are so blessed to have each other. We are so blessed to be in a loving relationship. We have no idea how people go through this with someone that they don’t love.
We arrived home to a house full of people. Kalissa’s family was here. Kelli and Georgia were here. Kayla was here and two of my childcare families were here. Everyone wanted to see the babies.
In the middle of all of this our Neighbor Girl and her mom came over. Neighbor Girl’s older sister had a baby a day after Kelli had Georgia. Things didn’t go well and the baby ended up getting sent to Lacrosse with breathing problems. Mom wanted to get the older daughter to Lacrosse to see the baby and they wanted to know if it was okay if Neighbor Girl stayed with us over the weekend. There are rules that don’t allow anyone under 18 to be in NICU so Neighbor Girl needed somewhere to hang out. Of course we said, “Yes”….so I have a weekend of sewing, grocery shopping and cookie making ahead of me. I’m so glad she likes some of the things that I like too.
So there’s a peek into our weekend and a peek into what treatment for Kramer will look like. Kalissa has been busy trying to work on a volunteer driver schedule. We’ve had a few people pick up days and that’s WONDERFUL!!
I’ll keep you posted on how things go…thanks for checking in with us.