I had my doctor’s check-up this week in fact, I just got home.
If you’re a regular blog reader you know I was diagnosed with thyroid cancer back in December of 2015. I had surgery to remove my thyroid in 2016 and was treated with Radioactive Iodine.
Long story short, the treatment didn’t work. Over the last few years, the cancer has been gradually growing but we didn’t know where it was. Test after test, scan after scan, the cancer grew but we didn’t know for sure where it was so we couldn’t try treating it again. Finally, in the fall of 2021, they figured out that the cancer had moved to my lungs.
The only problem was that my body doesn’t accept the treatment. So I went through a new procedure to redifferentiate the cancer cells in hopes that they would destabilize enough to accept radioactive iodine as that is the only way to treat thyroid cancer…even thyroid cancer that has moved to the lungs.
It’s a year later and now it’s time for the big test to see if worked.
I was supposed to go for the tests on Thursday and see the doctor on Friday. The weather threw a wrench into that. I ended up changing my appointments. I had the tests on Wednesday instead.
Parking was not the best at all. I hoped 7 was a lucky number.
I had a blood draw and then it was off to get a CT scan. Typically I’ve had them without contrast but this time it was with contrast so it took a little bit longer.
Even with the IV in, I was able to cross-stitch. I didn’t get a lot done but enough to mark the occasion and give this project a start. See??
This is the project, I picked so I would have something to do fill-in work on as I waited at appointments. Yep, that house and the bottom border are going to be great for simple waiting room stitching.
It’s a good thing I canceled the Thursday tests and moved them to Wednesday as this is what I woke to Thursday morning. Previously we had grass showing and everywhere the snow had melted except for on the north side of the house.
Here is Izzy the snow dog.
Wednesday the results of my tests started coming in. The CT scan showed marked improvements. It was enough that I was pretty happy about it. Kalissa was ecstatic. I don’t was a little less ready to completely hop on the bandwagon. I loved what showed in the scans but my bloodwork wasn’t in and that is always a crap shoot.
A few hours later that came in and I was right to be a little apprehensive. That number grew. I was supposed to get smaller than the 11 it was six months ago…instead, it jumped to 19. UGH. This number is the thyroglobulin tumor marker. If it’s under two, they consider that undetectable and stable. With mine being 19, it means that I still have cancer and will still be dealing with it.
What that meant together as a prognosis, we didn’t know…and being the tests got moved because of the snow, I had to wait from Wednesday night to Friday morning to see the doctor and hear her opinion.
Kalissa and Anders went with me as my doctor is always a little hard to read and what she tells me is often over my head…So Kalissa asks the questions I don’t know to ask or know how to ask.
Here’s what we found out…
The scans were good and very encouraging. The tumor marker was okay and something we will need to watch.
The treatment I did is new enough that they don’t know how patients react a few years out. That means there is no way to predict what happens from here. Another thing that is confusing is that there are 4+ different types of thyroid cancer with many different mutations. Mine is follicular with a RAS mutation. Some of the people who were treated before me don’t have the same kind of cancer so that makes predicting even harder.
Bottom line, I’m not in the clear. The treatment hit it down but it is likely slowly coming back. I’m so thankful I got the chance to try the treatment and who knows, maybe we can try it again or maybe they will come up with a new treatment. It’s very possible.
At this point, my cancer is treatable. It will not be cured. I still have active cancer growing in me.
I am scheduled to come back for scans and bloodwork in July. Maybe we’ll know a little more then? Who knows. I’ve been living life like this since 2015 when I was diagnosed and I’m getting somewhat used to the rollercoaster ride this has been.
I’m hoping the treatment bought a little time for me. At this point, we really don’t know. My cancer is checked every six months or so. In between, I’m living life and not worrying about cancer. Who knows. I might die in a car crash before cancer takes me away. There is no point in worrying about it. Every day I get is precious. Every day is one more day that I get to try to make a difference. I’m gonna be busy doing my thing and not worrying about it. I think that’s the best thing I can do.
I will be hosting an auction starting tomorrow on the blog. I have to do some behind-the-scenes stuff to get it to load and work right. That means the post will go live later than my normal blog posts do.