I’m still a little tough. I’m back on steroids and that has helped…but I don’t want to be on steroids forever because that’s not good for me. The steroids really mask a lot. They make me feel zippier than I actually am but I think they are helping with the mouth sores which is a blessing.
A kind blog reader, Denise, send me a humidifier. I didn’t have one. It’s one of those things that I always intended to buy and really never got around to buying one as I didn’t know what kind was best…you know how it goes. But, what a game changer. I should have bought one years ago. THANKS SO MUCH, DENISE.
Denise did the work of picking one out that is great. THIS is the one she sent me.
I was pooped by the time I went to bed and almost didn’t set it up on the day it came. I’m so glad I did. It was a… miracle worker and only took a couple of minutes to fill and set up.
In the past, I was worried that I’d have to fill one of these every night and it would be a chore. It says it runs 80 hours. That’s no big deal to fill that often.
I’m a mouth breather when I sleep so my mouth on top of already being so dried out and miserable was taking a BIG HIT overnight with my mouth breathing. The was so much better with the humidifier and a huge relief for me. It was the first time I woke up happy and hopeful in over a week.
My mouth is still extremely uncomfortable…I still feel like it’s sunburned on the inside. The humidifier was a great improvement to my previous nights. Again Denise, THANKS!!
Carol sent some goodies hoping to help me with the dry skin…
… and another blog reader sent these hoping to help with my mouth issues.
I had felt crappy enough that Kalissa convinced me to go and get a Covid test…Thankfully that was negative.
So many of you are helping to take care of me and I appreciate your helpfulness so much.
I have a prescription Magic Mouth rinse that isn’t fun but necessary at night to sleep. Do you know the taste and feeling in your mouth of the numbing stuff the dentist puts in your mouth before they give you a shot? Well, that’s the stuff and taste of this mouth rinse. It numbs the entire inside of my mouth. I am supposed to swallow it at this point because they believe the sores go down into my throat. UGH. It’s a terrible taste but at least it numbs it up so I can sleep.
As far as eating goes…
It’s hit and miss. I mostly eat soft foods. Yogurt is great. I made a batch of homemade rice pudding. That worked. Oatmeal is good. Bananas are good. I really can’t taste food right. But I know I have to eat something so do. Karl brought me chicken the other night and I was able to eat that. I’m excited about small victories. I really have to think about how I eat, chew, and swallow as it’s super uncomfortable and actually painful if it doesn’t go well.
I have mac and cheese on tap. I think that should be an agreeable meal.
The swelling in my jaw is down so my jaw isn’t popping out of place as much which is super helpful with eating…not perfect but much better. At least there isn’t pain with it now…just awkwardness that makes eating a little challenging.
If you saw me on the street, I look like my normal self. People think that because I’m still writing blog posts that everything is great…but behind the scenes, I’m not 100%. I’m making it though and that’s what’s most important.
The whole situation does remind me that everyone is struggling with something…often things we can’t see…so be kind. You all have been super to me and I so appreciate it. I’m only writing that as a reminder that others are out there like me…looking pretty good on the outside but have some crap going on behind the scenes. Please be helpful to them too.
I told my kids the other day that I feel 25% better than I did at the worst. It’s been about a week now so hopefully, I’ll be at 50% before long. I’m super thankful for the progress even if it’s slow. My next big challenge will be getting off the steroids without a setback. Fingers crossed.
I’m still super thankful I was able to be treated even with these side effects. In a month, I’ll be much better. I just know it!! I can do a month…
Many thanks to the cards, well wishes and support you all have given me along the way. It’s MUCH appreciated.