Today Kramer’s radiation appointments were early in the day. He left at 6:30am and Kalissa was his driver. I can’t tell you how wonderful it was to stay home and not worry about any of it. The problem, that all makes me feel a little bit guilty. Kramer still has to do it all. I get the luxury of staying home and doing childcare. Today we have a late afternoon appointment so Kalissa will take over and do childcare from 2:30pm on. We’re working to get someone to take the Thursday appointment. Kalissa picked up a shift at work and Kelli has to take Georgia in for her check up. It’s a never ending juggle of who can go where when. I am ever so thankful for the girls. They have made all of this possible.
EVERYONE is counting down the days to Friday. We are so eager to have the radiation hurdle jumped. I’ll be honest, all of us are happy but also a little disheartened that we didn’t get the BIG finish of radiation that we had hoped for. With the cancer having spread to his bones, we are a little anxious still.
Our latest weird insurance thing…THIS…
The home medical supply delivered food for Roger for a month for his feeding tube. ALL of this is for a month. Being our insurance deductible changed the company called me and had to have payment for all of this upfront. This is $840 worth of food that will feed him for one month. I had the money to cover this but seriously I am sure others going through this don’t. I don’t know what we’d have done had we not had an emergency savings account. (and where am I going to store all of this??!)
On the pain front, Kramer is doing much better. He slept a lot but at least there isn’t the terrible pain and for that, I’m thankful.
I’ve been gone from the house for so many days. There are so many things that I’m working on catching up on….laundry, recycling, mail, email, bills, all of the day to day things that we do that we don’t even realize we’re doing. I’ve had to start a new plan that when a bill comes in, I pay it immediately. Can you believe that somewhere in all of this I forgot to pay our property taxes? Oh my word. I was so embarrassed.
I’ve been trying to get thank yous out…I’ve been trying to catch up on blog posts. I’m terribly behind on that. I’m not stressing out about it all…just things I’m trying to keep managed.
So many people off to help or ask if they can help. Seriously, so many of the things are just things I have to do. People have asked me if they could help with childcare. That’s hard too. The kids know me…and I need them.
The cards and notes you all have been sending have been the highlight of our day. All of you write such wonderful notes. Some people have had loved ones and they too have gone down this cancer road. Some people have roots in Iowa and identify with us. Some people don’t want to be known to us and just sign a card sending prayers. We love all the things that are sent to us. We read them and smile…we read the and commiserate…we read them and are stunned by the loving words and gifts you send our way. We truly thank all who have send cards and gifts. We are AMAZED.
I’m hoping that the pain is all good, that we don’t end up at the ER and we make it through to Friday with no need of a medical update from the Kramer house. If you don’t hear anything on that front, assume it’s all going okay. I don’t want the blog to only become a place to hear our medical woes….so I’m sending the blog back to posts that don’t include a huge medical report.