Update from the Nurse

I know many of you are waiting for an update on what happened after my tumor marker results I told you about on Monday. If you missed that blog post, you can read it HERE.

I’m running out the door to the cross stitch retreat and don’t have time to do a huge recap. You’ll have to go back and read that post…and here’s the follow-up.

I ended up writing this note to my doctor:
Hello…My test result finally came back. We were waiting for the thyroglobulin tumor marker. I had the test done locally not realizing that they would send the sample to Utah to be tested or that it would take over a week. The number is high. 1070. But as I am looking at the result is says, “normal range is between 1.3 and 31.8”. From my past experiences, I don’t believe the test that was done is on the same scale or values as Mayo Clinic uses. I was told in the past that anything over 2 was suspicious and that cancer might be active. I don’t know if this test number will even be helpful being it seems to be on a different scale. I am wondering if I need to have the test redone at the Mayo Clinic so we are comparing results on the same scale. I would be happy to be retested at Mayo Clinic before my Friday appointment. Please let me know if that is what you recommend. If retesting is necessary, it would have to be done before Friday so the results are back in time for my April 5th appointment. Thank you.”

I ended up getting a response from my doctor’s nurse. Here it is copied word for word.
Hi! I have asked the our team to enter in your recent thyroglobulin levels to the medical record. Your previous thyroglobulin level was 2,692 on 11/30/23 so thinking the 1,070 is better. Dr. Ryder will review at your visit 4/5/23 and let you know if further labs are needed.”

I’m a little frustrated with her answer…but have been dealing with her for several years now and in all that time I have only had about two good experiences with her so it’s nothing I didn’t expect. My frustrating experiences with this nurse have been many.

So…Tomorrow I have my telehealth appointment.

I will try to get a blog post written when I get back from the retreat on Sunday and let you know the results of what came of that appointment.

For now…I’m forgetting about it all the best I can and enjoying my time away. My life is about more than cancer and for now…my focus will be on having some fun!!

Please go out and do something fun with your time too!! Life is about so much more than our problems.

16 thoughts on “Update from the Nurse”

  1. How frustrating! I truly admire how you are able to set this aside and focus on your upcoming retreat. You are so right–“Life is about so much more than our problems.” Prayers for a more enlightening, positive review from your doctor.

  2. Go enjoy the retreat. Isn’t it amazing how needle and thread can make us feel better, if even for a moment.

  3. Hope you have a fun retreat and able to just “enjoy” the process and company. Mondays another day- to put out fires and think…
    Blessings to you and your family

  4. Yes, have some fun!! I hope you find lots to laugh about too, since laughter is good medicine. I am always anxious to hear and see what you did at retreat – something to look forward to!

  5. Have fun on your retreat. Hopefully you will get some good news at your phone appointment tomorrow. You’ve got this! Hugs,

  6. Keep up your positive thoughts! If I remember correctly, this is the earliest you have taken the blood test after treatment and you said the treatment keeps working for a few months. If it has gone down that much in a few weeks, I imagine it will continue to come down! Have fun this weekend!

  7. Enjoy your time on the retreat. Once again, I admire your attitude. You’re right, life is about so much more than our problems. Thanks for that, a good thought to hold onto. Blessings to you

  8. I hope your telehealth appointment with your doctor will bring you some meaningful answers, and some good news. In the meantime, enjoy every moment of your retreat! And don’t worry about rushing to update your blog with your appointments results. Yes, we are concerned about you, but we don’t want to cause you any more stress. Just have fun at your retreat, and enjoy life a day at a time.

  9. Sorry, me again. Just want to say once more how much your positive attitude inspires me. I have some mental health problems that I have at last begun to work through. It’s scary, but I need to do it. But your encouragement to do something fun is also an important part of this process, same as for you. Once again, thank you, and I hope you have many more years to enjoy your family, your work and sewing, fostering dogs, and continuing to uplift us with your wonderful posts. God bless you.

  10. Sorry about the lack of clear answer from the nurse. It’s good that the number is lower though. Hopefully it will continue to drop for a while yet. I can’t help but think/hope that Mayo would not have been OK with you getting the test done locally if those methods and scales were not somewhat close or could not be translated to the Mayo scale.

    Have a fantastic time at the retreat!

Leave a Comment

Your email address will not be published. Required fields are marked *

Scroll to Top