I’m home. I’m okay and happy. VERY-VERY thankful.
I thought I’d give you a little recap on how it all went. I know many of you find it all interesting….so here goes.
Friday I took my last oral chemo pill.
I drove to Mayo Clinic and got there with perfect timing. It was so nice to be able to go at noon and not worry about getting up early. The other days last week it was up at 5:30 am and driving to make 7:30 am appointments.
I made good time and pulled into the parking ramp hoping it was okay to park here when I knew that I would be anywhere from 1-3 overnights. Of course, that was something I forgot to ask about.
I snapped this picture…proof to my kids I had made it.
I wasn’t in the waiting room long until I was called back and handed off to a nuclear medicine doctor who had to do a final briefing on the protocol for the procedure.
I have to carry this card around with me for the next 90 days as I might set off a security alarm.
From there I was taken to the hospital. They have a lead walled room for patients with Radioactive Iodine…but my procedure is uncommon enough that they need the room for regular patients too. So they cover the room in plastic. This was my bathroom…
Everything I would potentially touch was covered in plastic. Even my telephone. This was my only real communication and I couldn’t call out.
I did have a television but the remote was covered in plasitc.
I really used the room more like a hotel room with room service. I didn’t really need care although they did have to do vitals on me. I had WONDERFUL nurses. All the staff was absolutely great!!
Anything I took in the room with me, couldn’t go home with me. So…no cross stitch. No phone…No books or magazines unless I was willing to leave them there and they would be thrown away. I ended up taking me 8 year old Kindle that had a cracked screen that was S-L-O-W! At least I could message the kids on messenger as I couldn’t call out using the room phone.
I would say my BIGGEST complaint about the whole thing was the food. Remember I have to eat low iodine? Well, no provisions are made for that. None. ZERO.
From the hospital menu I could be possitive and eat the following items:
-Cheerios (no milk)
-Baked Sweet Potato
I risked an egg white omlet with mushroom, spinach and tomato.
It’s so hard with industry food. Was the egg white a patted egg white? If it was, there easily could have been salt already in it. The one I did get had a piece of chicken in it. I didn’t order chicken so how was the pan seasoned before it was cooked? I’m not allowed to have cooking spray. UGH.
I was miserable on the food side of things. I ended up remembering that I could eat at Chipotles. I contacted Kayla and she ordered food from Chipotles then Door Dash delivered it for lunch on Saturday and supper on Saturday. That was a bit of a hassle as the nurses had to go down to pick it up because Door Dash personal aren’t allowed in the hospital. It all worked out but was definitely a little tricky.
Each day someone from Nuclear Medicine would come up with a Geiger Counter and test me to see if I was under the limit to be able to be released to go home. My number had to be under 7. I started out a 19.6. The next day I was 11.2.
On Sunday morning, I was under. YAHOO.
I spent my time looking out the window, watching television and doing suduko puzzles. I was bored. Everyone always asks, “How do you get so much done?”. The real question should be, “How can I do nothing?”. That’s MUCH harder for me.
I pulled onto the road as I was leaving and saw the cool pattern on the Marriott transport van. I love those T’s. They would make a fun quilt block. Hmmm. My bored brain was seeing everything in a new light.
I was able to get home on Sunday around 2 pm. I was so thankful to be home. I couldn’t have been happier to pull in the drive. I love home. I love life.
Thanks so much for the gas gift cards…With them I was able to make all of my trips back and forth and didn’t pay for any of the gas on my own. It was so appreciated. It made the travel so much easier without the worry of how I was going to afford everything.
They did a scan on me before I left. That will be the real test on whether this completely worked or not. I’m hoping to get the results of that early this week. I’ll share those when I know.
Besides that, this is all behind for the next 6 months. I’m hopeful that then I’ll get another 6 month pass. The Nuclear Medicine doctor I spoke with was hopeful…so I’m going to be hopeful too.
I’ve gotten questions on how I feel. The only real complaint I have is tired and sore mouth. Tired because they really mess with my thyroid numbers to get me to accept the Radioactive Iodine. I am VERY hypothyroid now and that will take a week or so to fix itself. My mouth is very sore because I have to suck on sour candies to help my salivary glands to work. Radioactive Iodine can take out salivary glands and sucking on sour candy helps. They make my mouth sore so I’m trying a to suck on them but not too much that my mouth is super sore. All of this I can easily handle and are only temporary things.
Thanks for everything along this bumpy ride. You all have really made it so much easier with your kind words, thoughts, prayers and well wishes.