Yesterday was the day we found out lots of things concerning my thyroid cancer.
Let’s start with all the good things….
The cancer has not spread.
My numbers are good so the doctor is hopeful that I will not have a re-occurrence.
In the picture we’re leaving Lacrosse. We’re starting the next chapter in this journey.
Isn’t all that awesome to hear?? We sure were happy about all of those things. All of them are very good news long term and that’s what truly matters most.
Taking the actual pill is no big deal at all. The scan was no big deal at all.
The part I’m having the most trouble with is the short term things and I feel really bad even mentioning them as they are short term and in the long run inconsequential. However, I’ve told you time and time again that 1-the blog is a bit of a journal to me and 2-I want to document my experience so that someday, someone else might be able to benefit from reading about my experience.
The side of effects of being forced to go hypothyroid are not very fun. I had no idea all the awesome things my thyroid was doing for me.
1-My body feels like a bloated whale. I’ve been eating little yet I’ve gained over 10 pounds in the last couple weeks. Normally I would have expected weight loss with the amount I’m eating. Nope. Weight gain and it’s all fluid. A person can look at me and see that I am retaining so much water. I am super puffy. I feel it gets worse and worse daily. All extra fluid puts pressure on my nerves. I don’t sleep very well because that make my hands fall asleep all the time. I wake repeatedly to hands that have fallen asleep. It is a very weird sensation. The extra fluid is reeking havoc with my foot. (remember my foot injury?) With all the extra fluid it’s not healing right. With the insole in my shoe and the swelling in my foot, I can’t wear the new shoes I had to buy. I’m afraid all I did to fix my foot was for naught and I’ll be back to the foot doctor once this is over but we’ll see.
The swelling is so bad that my reactions and responses are so slow that I’ve been told I can’t drive for a week. She said that my ability to react quickly is greatly impaired so no driving.
2-I have brain fog. I have it bad. I used to be able to jump from task to task. Nope. That’s not happening anymore. I have some energy, my brain doesn’t have the thinking power though. A blog reader, Claire, corrected my grammar the other day in the comments saying: “Dragged, not drug.” I wrote that Kalissa had “drug” us along garage saling. I had read, and re-read that sentence about eight times. I knew something wasn’t quite right about it but my brain just couldn’t figure it out.
The kids have called me in the evening and I just feel in a fog and like it’s a chore to keep up a conversation. I’ll have good days, and then there are really bad days. Looking back at the blog I essentially wrote the same post a couple days in a row. I didn’t know until I look back now and can see it. I hate the feeling. It’s not necessarily that I’m tired and don’t have energy, my brain just can’t organize what to do. I’ll likely have to read this blog post about four times through to know for sure if it makes sense. Even then I won’t feel super confident about it.
3-My eyes are so watery they just drip. That has caused my eye sight to be blurry. The blurry eyesight has been a problem because it’s starting to give me headaches-nothing serious, just the dull ache type of headaches. It is not fun. Again, all do-able. But again, no fun.
5-The swelling has also turned into joint pain.
Like I said, this is all manageable just not fun. Had I have to do this all again. I would take the days off and do the shots. There was an option for shots rather that go off the meds which is doing all this to me. In that case I would have had to drive to Lacrosse and back four extra days. Essentially making me take four more days off of work. Even though I don’t really have PTO or paid vacation, I would happily forfeit the money and have my brain function. It’s a live and learn prospect. I didn’t want to put my childcare families out and make things hard for them. Initially I thought fatigue was the main thing I would experience…I thought I could handle that. Had I know all these other things go with it, I’d have chosen differently. It’s a live and learn situation.
I’m okay though. I’m still happy. I’m still plugging away. I’m just bloated, blurry eyed and SLOW while I go about my day. I am very thankful regardless of they side effects. This is still very do-able.
I’ll be able to start my meds again on Tuesday. From then on I will gradually loose the side effects. She did say it will be able a week before I feel noticeably better and a month before I feel like my old self.
As far as taking the radio active iodine pill. That was anticlimactic. I had to show two forms of ID. One had to prove my identity and birth date. The other just could be a credit card. I swallowed the pill and was done. My body feels no different from taking the pill.
So that’s the latest….
The only news in this whole post that really matters is 1-the cancer didn’t spread and 2-my numbers were good so occurrence is not likely..the rest, is all temporary.