Sunday With Gannon

On Saturday I talked with Kalissa.  I asked her if there was anything she needed.  I told her I could run up to Rochester with it if she did.  She said nothing really then as the day went on she said -ya she could use this…and ya she could use that.  At that point I just knew it was time for me to go and see them.  Kramer wasn’t up for it and felt terrible that he wasn’t but he wasn’t so I made plans to make the drive along.

We still had Carver with us and made plans have Grandpa and Grandma Friedman get him.  It was a bunch of calls back and forth.

I sat down to write a blog post and Carver was playing by me.  I didn’t think anything of it and that’s when Carver saw the picture of Gannon.  He immediately wanted to be on my lap and see the picture.  Then Carver said, “My Gannon” and started to get all teary saying “bad owie”.  I tried to scroll past the picture and he yelled “My Gannon, bad owie, Mommy Daddy.”

We had explained to him earlier that Gannon had bad owie and that Mommy and Daddy were at the hospital with him with the doctor and they were trying to make him feel all better.

He was VERY upset…I felt terrible.  I had no idea he was paying attention to me.   I quickly scrolled the opposite way to this picture which was taken earlier and told him look..he’s feeling a little bit better.
I felt terrible all the way around….first I let him see the picture and then lied to him.  Gannon is not better.

But…The NG tube is helping him get some relief which we are all thankful for.

Carver stayed with us Saturday overnight and woke in the night with a TERRIBLE cough.  You long time blog reader know a croupy cough goes with any cold Carver gets.  I was up, got him meds, check my phone and saw Kalissa was awake.  I texted her a few times and then went back to sleep when I heard my phone.  It was Craig’s mom and she wanted to go to Rochester with me Sunday morning.  We made plans to meet and I got up and started my day.

I left Carver with Kramer and Grandpa Kevin came and got him Grandma Debbie and I headed to Rochester.

Here was one of our first glimpses of Gannon….

He doesn’t look quite the same…I’m sure it’s the stress on him that’s starting to show.

He’s hooked up to tubes and monitors so holding him is a little hard…doable but hard.

I kidnapped Kalissa and took her to the mall to get a shirt and sweatshirt.  She’s at that TERRIBLE stage where her body isn’t snapped back into shape and her clothes don’t fit right because she’s nursing.  She’s up a size because of that.  So we found something and went back to the hospital.  It was a trip that she needed.  Just to feel a little more normal like it was a day out with mom was just what she needed.

While we were gone, Grandma Debbie loved on Gannon…

…and Daddy did too.

So what’s next for our little guy?  Monday he has a biopsy.  The results of that aren’t expected back until Wednesday.  It’s a test that takes that long.  UGH.

If it is Hirschsprung’s Disease like they suspect, he’ll have surgery on Thursday and will likely have to stay at the hospital 5 days after the surgery if all goes well.  If the test comes back negative, then they are back to testing.
So it doesn’t look like our guy will be home anytime soon.  Right now they are guessing he’ll be here all week.  I’ll keep you posted.

When I left the hospital Kalissa gave me a HUGE hug and said- I really needed you.  I said I knew you did…that’s why I came.  It’s so hard as a mom.  Yes I am worried about Gannon but I know the doctors are caring for him.  I know Kalissa and Craig are caring for him.  Although the nurses have been great, friendly and helpful- It’s my girl I worry about most.  I’ve been the mom and carried the load.  I know it’s hard.  I hate to see Kalissa carrying the load. I am so proud of her because she’s doing an amazing job…but still it’s hard to see.  I have witnesses her and Craig getting stronger together as a family.  Tragedy really can make couples stronger.

In the meantime, our church put together a prayer meeting to pray for the Gannon, Kramer and the rest of us.  That was very touching and meaningful to our family.  Kramer was able to go.  I wasn’t as I was traveling home from seeing Gannon.  I am still and always will be awe of the great support that is being sent our way.  It really makes it possible for us all to put one foot in front of the other.  We aren’t done fighting!!  #kramerandgannonstrong

26 thoughts on “Sunday With Gannon”

  1. I am in tears reading your latest blogs. It is so sad to see tiny babes suffering with health problems and more so when they don’t really know what the problems really are. My heart goes out to Kalissa and Craig and obviously the rest of the family too. I fell in love with Carver when he came into the world, he has that special little sparkle in his eyes. Now, with Gannon following, I feel exactly the same. It’s probably because he looks so much like Carver. Anyway, you are all in my prayers and I wish you all the love in the world. Take care as best you can.

  2. Arrowhead Gramma

    So difficult to see a little wee one suffering and be dependent on others to help them (doctors, nurses).

    Prayers continue for Baby Gannon, Kramer and your entire family as you weather this storm and time of uncertainty. How wonderful that your church held a special prayer service for your family. We know that God hears and answers our prayers.

  3. Judith Fairchild

    I’m so glad you have a caring church family. We’re praying for Gannon and all of you. Then you for the update.

  4. Elizabeth V K

    Sorry that your blog post upset Carver so that we can follow your family activities. Hope your writing about issues brings you some peace. Continuing prayers for you all.

  5. Jackie Goosen

    My youngest spent some time in the NICU with a heart defect. Your comments as a mom watching your daughter become a strong mom brought tears to my eyes. My mom was eight hours away and couldn’t come due to blizzards. Those were tough days. Hugs and prayers to you all!

  6. Jo-you and your family are SO strong……you all support each other and with that, you will get through this. Baby Gannon is still adorable! Hugs and prayers!!!!!

  7. Just a moment ago my Mr. Wonderful walked through the living room where I am checking e-mail before starting the day–his comment was, “any word on the baby?” You have a big family praying for you and your loved ones, Jo. Thank you for sharing about the church family. So glad you got to spend time with Gannon and his tired parents.

  8. No matter how strong we are, things are better when our moms are with us. Wonderful that you were able to go be with Kalissa. So happy to see how your community is rallying around your family. Know that your blog community is rallying around you too. Continually praying for your family.

  9. Thanks for the update. Some of those pics bring back lots of memories. My oldest spent 2 1/2 weeks in the NICU at birth. I couldn’t even hold him until the day I left the hospital, about 4 days after birth. All those tubes made it hard to hold him. My husband still tears up just seeing a little one in that situation. It’s hard, but I know you will all pull through. All good thoughts and prayers for the procedures today. Hugs!

  10. Thanks for the family update. I hope both Gannon and Kramer will start to feel better.
    I will continue to pray for good health for all.

  11. Oh my goodness. I can’t believe what Gannon is going through and your family’s difficult times right now. I’m glad the oxygen is helping Kramer. I hope you get some rest soon to keep healthy to help all these people. Prayers to all of you. mary

  12. Gayle Troccoli

    I cried for you all when I read this post. Sending positive thoughts and most importantly prayers, not just for Roger and Gannon, but for all of you. God bless you all.

  13. Thank you for the update. We will continue to prayer for all of you. Love, hugs and prayers coming you way.

  14. This was hard to read, but so glad you were able to visit them at the hospital! I hope Kramer does ok with his appointment today.
    To blog readers who want to help Jo and her family: remember that if you need to order something from Amazon, start at the Amazon link on her blog and she will get a certain % of what you spend. It’s doesn’t increase the cost of what you buy. It’s really a “no brainer”…..if you can just remember to start from her blog! Hopefully there will be a gofundme account soon, but until then we can use the Amazon link.

  15. Mary Ann Mettler

    Tearful post – prayers for you all! Thanks so much for posting. Nothing like grandma’s love and care. So glad you were both able to go see your children and grandchild. Praying answers come by Wednesday. Also thinking the the chemo today.

  16. Thank you for your heartfelt and realistic post. My heart goes out to all of you but especially little Gannon. Sending love and prayers!

  17. My heart breaks for you Jeanne ……I always knew you were a strong, good (girl) woman ,mom ,you don’t surprise me with your strength both in God & physically just take care of yourself too, let others do for you ….Prayers & Love ……for all ………..

  18. Prayers for your family. I share your news with my family, and you are getting their prayers also. Thank you for your updates as we feel like we are going through this with you and your family. Love and prayers. Martha

  19. My tears flowed when I saw little Gannon’s picture this morning and read your latest post. I went immediately to prayer for him and am continuing to hold him and your whole family up in prayer each day. What a wonderful church family you have that they held a special prayer meeting for Gannon. God bless and keep you all as you weather this storm.

  20. Jo, your daughter is doing a good job because of the example her parents have set. I’m sorry to hear that Gannon is still not doing well. Hugs and prayers to all of you.

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