Here’s the patient update….
Kramer had a rough Thursday. It was a little better than Wednesday but still not wonderful. As the day wore on, I think he got to feeling a little better all along.
We managed to get two things done that he had been wanting to do…
1-cut his hair
2-fix his debit card
Sometimes it’s the little things. He’s at the point that things as little as this can be helpful…I’m so thankful because these things, I can do for him.
Friday he managed to get out to work for 3 hours or so. That was a blessing to us both. He so misses work..and I miss the normalcy of being in the house with the childcare kiddos by myself.
The Gannon report….
Hmm…we’re not quite sure yet.
Thursday he had a bloating episode again. He threw up all his milk again.
We don’t know exactly what or why it happened. He’d only had the expensive formula so we don’t know quite what to think. Kalissa called in to the doctor and…. a suppository was prescribed.
We are all frustrated as Mayo told us he wouldn’t be released unless he was eating and pooping on his own. Well he’s not pooping on his own. UGH.
Everyone in the family has had a friend or a friend of a friend or niece or someone else they know who had something unexplained like Gannon has. So we’ve all been reading about all sorts of intestinal issues doing a little “backseat doctoring” which we know is dangerous but also, unavoidable if you get this not for sure, vague diagnosis.
So someone sent Kalissa a message suggesting this: Inguinal Hernia.
Kalissa read through it all. It sounded plausible. I thought it did too…Kelli did too. Hmmm. Well Kalissa had a follow up appointment with her local doctor and presented it to him.
He thought Kalissa had valid points and her concern. He listened and Kalissa felt like her concerns were heard. He told her that he was surprised a couple tests weren’t done that he thought would have been. These were tests that we were told they were going to do if they found out it wasn’t Hirschsprung’s but never did once the Mayo doctors decided to test out the dairy allergy premise.
Kalissa then asked the local doctor what she should do. He said it was up to her but they both seemed to feel it best that these tests get done. Kalissa opted for a second opinion and asked for her case to be referred to the University of Iowa Hospitals. The case got sent and they called her in about an hour and told her to bring Gannon immediately.
Thankfully Carver was already napping here…so she packed a bag and headed that way. Craig stayed here for now and will get Carver settled with one of us Grandma’s and find out if Gannon will be admitted before he takes off and goes.
So Carver is going to be missing his little brother again.
Worrying about Gannon is hard on us all. It’s so stressful for Kalissa. She wants to help here but knows Gannon needs to come first. I worry for her. It’s also hard when her gut is telling her there is something more. She keeps asking me, “Mom, am I overreacting? Am I being crazy?” I keep saying no. It isn’t normal for a kids’ belly to blow up like this after drinking a bottle…and he’s drinking the formula they recommended.
The tummy marks are to measure how distended his belly gets.
I’ll keep you posted and let you know when we know more here. I am feeling a little bit like it’s that movie Groundhog day and we keep reliving the same day over and over again. UGH.