Sunday night into Monday was not good for Kramer. By 8am when we were starting our trek back to Lacrosse he said his pain level was at a 6-7. UGH. The bumping down the spring pot holed roads didn’t do it any good. I am not sure why but he always tanks over the night. 7am-10am are always the worst of his day. We’ve been waking him up in the night to get all of his meds…but we still end up there with high pain levels.
At his appointment we saw Dr. Mariner. We’ve been working with him all along except for the hospital stay. We all commiserate about the cancer moving to his bones. About half way through the appointment the pain doctor came in. Between the two of them the meds were tweaked with the hope that things will be a little better these next few nights.
This is all a “test, guess and revise” problem. They test the amount of pain, guess what will fix it and then revise the pain med plan. It’s so hard…no one wants Kramer in pain but finding the exact balance is so hard.
We have an appointment on Friday with the pain doctor again to see how it all goes over the week but were told that we are welcome to stop in if anything needs attention sooner.
By this evening the pain was okay again. I feel so terrible when he’s in pain. There is nothing I can do.
From there we were off to radiation and then homeward bound. With the changes in meds that meant a stop at Wal-mart to the pharmacy again. It was a bit of a struggle to get meds again. The doctors kept several of the medications but upped the dosing. So new scripts were written but insurance wouldn’t renew them all immediately. We can pick up one in two days…one in four days and so on. OH MY WORD. I swear the pharmacy management will be the death of me.
We made it home just in time for the bus kids to get here. Kelli and Kalissa had done childcare for most of the day. Kalissa did sneak off with Carver to see the ENT doctor. Carver has had a tough haul over the last couple months. He’s had ear infections that won’t clear. He has double ear infection AGAIN…or still. We aren’t sure. Either way he’s getting tubes in his ear for the THIRD time in two weeks.
It was so good to see the childcare kiddos. I haven’t seen them for over a week. I’ve been at the hospital with Kramer. Oh the kids missed me. I got lots of hugs which was PERFECT. Oh I’ve missed them. They give me a sense of normal life.
After all the kids were picked up, we realized we were missing the TV remote. We started looking for it and realized when we picked up the couch to look under it that the couch was broken. UGH. The bottom of the frame snapped.
SO…on top of everything else, we need new furniture for the living room. It’s 10 years old…Kramer likely would benefit from a lift chair so I guess it’s time. Thankfully I had been putting a little money aside for new furniture for the last year or so as I knew the time was coming. A lot of overnight guests use our couch. Also if you ask any childcare provider, they will say they go through furniture faster than the normal person. Everything gets so much more use than the normal set of furniture does. My couch is napped on daily by two kids….the kids play on it really often during the day. It can be a boat or a hospital bed or a bus or anything else they can think of. I really liked our couch so it’s a bit a of a bummer but it happens. If we’re going to be spending so much time in the living room with Kramer being sick it might be a good time to spruce things up a bit anyway.
Kelli and Kalissa stayed for supper. Kalissa had put shirts together and sold T-shirts. The two of them were working on getting the shirts organized and distributed.
That’s Gannon there sporting his shirt.
Originally we were only going to do shirts for our family. Then we had others ask for them so she took orders. There was a fast turn around to get them printed so there was a short deadline to order. We’ve had lots more people ask for them so she’ll likely do another order period in a week or so. We’ll put something here up on the blog in case any of you want them too.
The girls helped with some other paperwork stuff too….there is so much to do. I don’t know how anyone handles this all alone. The shirts say, “Kramer Strong In this family no one fights alone”. Oh my…this is so true. From our kids to all of you, we feel surrounded by wonderful supportive people. Thank you for that.
Four more days of radiation. If you read this after 9am today, it will only three more then!! One day at a time….