Kramer Update: Plan “H”

Well here we are.  We’re on plan “H”.  We’ve been through plan “A” on Kramer’s cancer journey…that was the lung surgery that was unsuccessful.

Then we went to plan “B”.  That was radiation and chemo.

Then we went to plan “C” which was bone cancer.

Then plan “D” the broken neck.

We got sidetracked on our way to plan “E” with what we thought was pneumonia.

Then on Tuesday after the PET scan, we skipped right past plans “F” and “G” to plan “H”.  Plan “H” for us is hospice care.

We were at the clinic bright and early for the PET scan on Tuesday morning.  We weren’t supposed to see the doctor that day but I called and started pushing that we get the results the same day.  I saw Kramer and saw the toll the long back and forth car trips were taking.  I didn’t want him to have to go back to Lacrosse on Wednesday just to hear the results of the PET scan.  So I messaged our nurse.  I told her we needed this appointment to happen that day …and it did.

We were told that PET scan results take 2 1/2 hours to come back at best.  The only appointment they had seemed to be in the afternoon with the main doctor.  I continued to push and offer that we were willing to see either of the PA’s as we have seen and like both of them.  There was a receptionist that I loved from the start of all of this and more or less begged for her to make it happen sooner.  Then there was a hope that maybe we could see one of the PAs closer to lunch time.  That was MUCH better.  Kramer was called back into the office at 1 1/2 hours time and we didn’t have a real appointment.  That’s when we heard the news….The scan was bad enough that about three doctors on the team had already seen the scan and they had all consulted.  All agreed that our fight was over and and the leaving time had begun.

Kramer’s lungs are full of cancer (except the spot that was radiated).  That spot was completely clear.  He has cancer in his neck still.  He has cancer in his hip and his femur…his colon, along with multiple other places that they didn’t even go into detail about.  It’s too aggressive.  It’s too much.  It’s not anything they can treat so the details of where it all is is pointless.

The doctor was great.  Our nurses that came in.  They were great.  Everyone was VERY kind.  There are no other treatment possibilities for Kramer.  So that is when we were moved to plan “H”…HOSPICE.

For those of you who don’t know about hospice, it’s nurses and social workers that come in to our home and make life as comfortable as possible for Kramer.  Once people get to this stage everything is expedited for the patient through hospice.  Keeping Kramer comfortable and finding moments of happiness is our priority.

Karl is on his way home….I need a big Karl hug.  We all do.  Seriously, he’s the best hugger.

We’re muddling through…all of us are sad but trying hard to find ways to smile.  We don’t want Kramer’s last times with us sad and unhappy.

As far as the blog goes, I’ll be in and out.  Posts might not be as regular or about crafty topics.  It will likely be more of our family life as right now, that’s really all I care about.  I promise at some point, I’ll be back at it again on a regular basis.  Please know if I don’t post all the time…I’m okay…We’re okay.   We are watching out for each other and will make sure we’re all okay.  Our kids and now the grandkids have always been a refuge for me….I’m going to need them….and so the leaving time begins.

201 thoughts on “Kramer Update: Plan “H””

  1. Jo, I don’t even know what to say. Words are not enough. You, Kramer and your whole family is loved so much. The prayers and support will continue. Just focus where you need to. Do not worry one second about the blog.

  2. Dear Jo, this was the post I was praying you wouldn’t have to write. My dear husbands cancer journey was so similar to Kramer’s and he sadly lost the fight at the end of last September. We too had hospice at home care which with support from family and friends enabled me to nurse him at home till the end.

    Continued prayers and love to you all,

    Christine X

  3. Dearest Jo, Much love and positive thoughts for you and your family. Been there, done that, and it wasn’t easy. Trust in God, family, and friends.

  4. Jo, so sorry to hear this news. Take care of Kramer and take care of yourselves. You are a strong family (Kramer Strong) and will support one another through this difficult time. We’ll understand if there are no posts but will be here when you’re ready to share. Hopefully we can all help you bear the burden.

    Carole

  5. I was praying that you wouldn’t have to write this post. You and your family will remain in my prayers. Kramer Strong.

  6. writing you through tears….Kramer strong, strong enough not to let the diamonds of this time….and none of us know, maybe it will be longer and better than we imagine….slip away unnoticed….
    my father died more than 30 years ago.and now, most of what myself, and my brother and sister keep with us from then are those precious moments, shining like diamonds, his last gift to us. it says in the ethics of the fathers that the work is not ours to finish, but we can’t ignore it either….sending you strength and love and prayers, shoshana

  7. Tomorrow is not promised for any of us, but Kramer’s yesterdays and today’s have been filled with the blessings of a wonderful family, many good friends, hard and rewarding work, his deep faith, and you. Prayers for peace and love, strength and comfort for you all, and, finally, joy for Kramer as his journey ends in the embrace of our Heavenly Father.

  8. Frances Welch

    Words are just not enough. Prayers and thoughts are being sent from across the pond
    Love to you all
    Frances xx

  9. Hospice provided my friend the time to spend with those she loved and the ability to give them the memories to continue. My prayers, tears and love are sent to all of you.

  10. Paulette Voit

    Dear friends, my heart is breaking for all of you. I have been in the spot where you are now and it’s the most horrible thing to deal with. Your thoughts are all over the place while you feel that you’re dying inside. My prayers will continue to be with all of you with thoughts that Kramer will have peaceful days and the pain can be kept at bay.

  11. Oh my I am so sorry. I walked the cancer and hospice path with my father. Our days together were difficult at times and so very precious always. It taught me to lean into God and trust His plan. I didn’t like it, I just knew it was the only path. So I smiled and loved my daddy.

    I will continue praying for all of you. For smiles and laughter. For love and peace.
    May God bless you all and hold you gently in the palm of His hand.

  12. Elizabeth V K

    Continuing prayers for you all. I love reading your blog but understand that it is far from a priority.

  13. Haven’t been following for too long but have been praying for Kramer and your family. These last moments can be sad but they can also be filled with many sweet memories you will carry in your heart forever. Will continue to keep you all in my prayers.

  14. Rachel Hinton

    So sorry to hear about Kramer. Our thoughts and prayers are with you all during this difficult time.

  15. Oh Jo! My heart breaks! There are no words…just know you and Kramer and the whole family are thought of and prayed for. God be with you, I pray you feel His peace and strength. Hugs.

  16. Dear Ones…my heart and love go out to each and every one of you. And as always, you are in my prayers.

  17. Hugs and Prayers to you as you begin yet another journey. May God hold Kremer and you and your family in the palm of his hand and keep you forever blessed.

  18. Jo, I am so sorry. Sending prayers for strength, peace and comfort for you and Roger and all of your family. Know that God is with you always! Lots of Hug to all!

  19. Prayers for you and Kramer as you make this journey. My heart is hurting for all of you. Sending long distance hugs.

  20. Jo & family, I am so, so sorry to read of this news. I will continue to pray for your family. I so appreciate your blog and look forward to reading everyday. Thank you for keeping it real and allowing us all to follow along on your journey through life.

  21. Dear Jo and family – like so many others, I wasn’t ready for this post. I’m sure you were not ready either. We never are. Prayers continue but it just doesn’t feel like enough. I’m glad you have your kids and family close for support. These are the times that I also feel like a part of your family and wish I was closer to help out.

  22. Dear Jo, this is the sad news I hoped not to hear. You are all strong and will support each other through this trying time. Continuing to keep you in prayer

  23. My heart goes out to all the Kramer clan. I love your positivity Jo in wanting to find some joy and happiness during this hospice time. And I know you can and you will because it is what you want. This time is precious for each and every one of you to tell stories, share some laughs and support each other through the coming days and weeks. I’ve traveled this path with both my parents. I send you love, hugs and prayers for those joyous moments that will bring you strength in the darkest hours. God blessed your family with all these grandchildren who are a particularly joyous gift right now. So many hugs and smiles to gift throughout the days.

    God lift you all up in his loving hands. Amen.

  24. So sorry to hear this, Jo. May God bless you all with his peace and give you all joy in your time together. Words seem so little here. Well be praying.

  25. Prayers for the entire Kramer family. You are a strong and close family. Lean on each other and know that you are in so many peoples prayers for all of you. You are all loved by so many people near and far. Cherish the family time together. Thinking of you and praying for God’s hand to comfort all of you during this time.

  26. Nikki DeRamus Moshier

    I am so sorry for you all. May his last days be filled with joy and love and that you find solace in that knowledge.

  27. So sorry about Kramer’s news. I know it’s not what anyone wanted to hear. Don’t worry about your readers as I think we all agree that family comes first. I know you and your family have a rough journey ahead and you will need the love and support of each other in the months ahead.

  28. Stearns Carol

    OH, Jo, I”m so sad for your family. We have learned to love you. Its okay if you take a break from posting. We would understand. Hugs and prayers.

  29. So many of us have been where you are now and no one wants to be there. Even when you’re not posting, I hope you will feel the love emanating from all of us who have come to care about your family through this blog.

    I can’t help but compare Kramer with George Bailey from the movie, It’s a Wonderful Life. By all accounts, a life well lived!

  30. I pray that hospice gives you and your family what you need. Above all else, may God comfort you all.

  31. So sorry it has come to this so soon, Jo. I’m glad you have the amazing support from your family that you have. Hospice will be a blessing for you during this time.

  32. Donna in Texas

    Just breathe
    then be in the moment.
    Will continue to pray for the peace that passes all understanding.

  33. I’m so very sorry to hear this news. My prayer is that you and the family draw comfort and strength from God during this time. I also pray that this journey is filled with love and light.

  34. Sharon Runyan

    Such a hard post to write . Continuing to keep all of you in my prayers. ❤️✝️❤️✝️

  35. Prayers and wishing peace and calm to be with you during this new journey. Keep up your strength and like you said, keep up the smiles. These will be very special days for all of you. Hugs all around.

  36. Nolene Lattin

    You and your family will continue to be in my thoughts and prayers. I helped my mom with her journey that was completed in January. It is not easy but there was a lot of laughter with the tears. Will be thinking of you.

  37. Mary Ann Mettler

    Jo, This is such a difficult road that needs to be traveled. My heart breaks for you all. Prayers for peace and finding and making special memories in these last days. ‘Drive Safe’ and thanks for sharing when you are able.

  38. Sending prayers of comfort for you all. My family has been on this journey twice and it is not easy. Hospice makes it so much easier, cancer is no way easy, but hospice takes alot od burden off of the They r wonderl people and provide so much comfort snd support.

  39. Mrs. Kramer I am so very sorry. I was trying to read your post through tears as my heart breaks for your family. My prayers are certainly with your family. Cancer touches everyone. As I write this my own sister is getting her second chemo treatment for lymphoma and my husband’s sister has lung cancer which has spread to so many places. Praying for you all. ♥️

  40. I’ve been a blog reader for quite a few years now and have commented occasionally. I’m so saddened to hear this news about Kramer. I’ve sent a prayer for your family and will send many more. Don’t worry about this blog as your time with your husband is more important!

  41. I’m so sorry. My thoughts are with you and your family.
    Hospice folks are great, please let them help you.

  42. Christine Aay

    I am so sorry to hear this sad news. Cancer is a nasty enemy. Wishing you strength and courage as a family to carry on carrying on to make life as joyous and loving as possible, while dealing with a life altering cataclysm. Hugs to all of you!

  43. Hospice can be a gift in this sad journey. I’m sorry you’re here, but know that you’ll be surrounded by love and support from not just hospice but friends and family. Make the most of your time and make good memories. Blessings to you all.

  44. I have gone through Hospice with several loved ones. It is a beautiful way to say goodbye. Prayers for peace.

  45. I can’t thank hospice enough for the work they do and did to make the last months of my husband’s life and ours of higher quality. These life journeys are so hard, I have tears streaming down my face in empathy and pain. I hold your whole family in my heart. Blessings

  46. I’m so sorry about your having to move to plan H. May your family and friends give all of you the strength you need to be there for each other day by day.

  47. SusanfromKentucky

    I am so sorry to hear this! I was really hoping he would be able to beat this horrible disease. Know that my prayers are with you all during this time!

  48. Linda Carpenter

    My heart hurts this morning for your family. Hospice is a wonderful ministry to the entire family. Their care is amazing. Prayers and Hugs.

  49. Oh my goodness. I am so so sorry. I have been following your blog for awhile but don’t usually comment. Today was an exception. I’ve been praying for you and your family and will continue to do so. I needed to tell you that Your strength and positive approach to all of this is so perfect for your hubby. Sincere peaceful wishes to all of you. mary

  50. I’m so sorry, Kramer family. I sent good wishes and really big hugs to all of you. I hope this is a fast journey for him only because he will be free ofin. You are all in my thoughts. Stay Kramer strong! p

  51. So sorry to hear about Plan H. I am praying that Kramer will be able to be pain free.
    I know that he is surrounded by a very loving family who will make this next path easy for him.
    Much love and prayers.

  52. I’ve said prayers for your family during this really stressful time. Hospices are wonderful and will provide comfort to your husband and to your family. I’ve gone through this with my husband too and my mother and dear brother. Know that your family will be prayed for by many people. Time will help you.

  53. No words…just sending love and prayers. Please don’t worry about the blog. Just rest assured that we are all out here supporting you and praying for you and your family.

  54. Jo, having just been thru my husband’s lung cancer journey in October, I am crying along with you. Hospice nurses are truly angels on earth. They will come to your aid over and over again. I’m so glad your family is able to help and give you solace. My prayers are with you.

  55. I am so sorry to hear about Kramer. This is such a sad and difficult time for you and the family. I can tell you that I had 2 friends who were in hospice care, and it was a blessing for them and their families. Hospice was so kind and caring and did everything to make my friends comfortable. They provided such support for the families. I’m sending you all love, courage, strength and peace.

  56. Around here we call it ‘Circling the Wagons’. You’ve been so very open about sharing this journey and right now, the energy you put into your posts are best reserved for your family. I’m so glad that Karl is on his way…prayers for safe travels for him and as always, daily prayers for all of you. I know you will all hold tight to each other as you treasure these days.

  57. Continuing to keep you, Kramer and your family in my prayers. I’ve walked this heartbreaking journey with family and friends several times so I know all too well what you’re going through. May your faith and love comfort you in this difficult time.

  58. Prayers for you and your family. Love and memories are the only things in this world that are important.

  59. Jo, I’m so sorry. I’m crying for you and Kramer even though I’ve never met you. The hospice community is wonderful, as I discovered when going through it with my mom. Cancer is a terrible thing, but hospice nurses and caregivers are a bright light in that darkness. I learned that dying is a natural part of life, and God sometimes sends total strangers to help you through it. It will be sad and difficult in so many ways, but your memories of this time will be a blessing in the future. Praying for you and the whole family.

  60. I am crying for you for having to go through this leaving and changing time. We have never met, but I feel you, Kramer, and the kids are friends of mine. Love them and yourself for me. I was with my dear mother-in-law during our leaving time and it still is a comfort that I got to tell her I love her and say goodbye. She also told me she was ok with leaving. We’d see each other in Heaven.

  61. Jo, I read your blog regularly but don’t comment much.

    I will continue my prayers for comfort and peace for all of you.

  62. Deborah Rhodes

    I have been a reader for years. Never comment just a enjoyed hearing of your quilting journeys. This past few months I have read and worried along with you today I cried for you and your children. Blessing and healing to you all. The medical people will help Kramer. They have to be great people to be in this profession. I am sure you all will take great care of each other .

  63. It is so true when they say Love will get us through. Thank you for being so candid in this battle. You have given strength to those who have come to know you through your blog posts and are kept in our thoughts & prayers. May God grant you serenity, peace, joy, and love during these hard days, weeks, and months.

  64. Jo, I am just so at a loss for words. I feel so bad for all you Kramers, it is just so hard to put into words to try to offer any kind of comfort (of which there is none). This news is just as if it hit my family or my best friend. We are all just so helpless. You have to know you are still in our prayers and definitely in our hearts. Sending all my thoughts, prayers & love your way. Janine Baker in NY

  65. Dear Jo and family,
    I am so sorry to hear the results. Please know that Hospice is wonderful (both my mom and dad utilized the services). Also know that your family is in my thoughts and prayers. Wish I could do more…
    Joann In PA

  66. Jo, I’m so sorry to hear your news about Kramer. You have been dealt a blow that will change your life. I have been in your shoes and it’s painful but you will get through it. Having hospice is a life changer. Having your wonderful family around you is so important. I’m glad your son is able to come home.

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