Kalissa got to University of Iowa Hospitals and Clinic for a 4:30pm appointment for Gannon yesterday. They admitted him as they had concerns for him as well.
As soon as he got a room tests started…blood tests, ultrasound and x-rays. Kalissa was very impressed with them.
Gannon is such a champ. He slept through getting an IV put in. Sometimes that makes me worry that pain is something he is just accustomed to so a needle stick is no big deal.
This is his room. Kalissa says it it really nice and she’s very impressed so far. The couch you see in the back pulls out into a queen sized bed.
My times have changed since I had my kids in the hospital.
Kalissa and Gannon ended up spending the night at the hospital and this is her update as of noonish today:
“We are HOME. For good.
We got the closure we needed from UIHC. I’m so angry we didn’t start this crazy 10 days in Iowa City instead of Rochester. We will not make that mistake again.
Gannon’s belly looks great. We had tons of bloodwork, another ultrasound, an X-ray, and IV fluids. Overnight things seemed to have finally tamed down and his abdomen is not as distended.
Our Pediatric GI doctor looked at all of the imaging and was able to trace a gas pattern that looks more like Gannon is swallowing a ridiculous amount of air which cannot be absorbed by the gut. This totally makes sense to us which explains why he has so much air in his belly to begin with. That’s a simple fix – we will be trialing new bottles to find one that works for us. We are using Phillips Avent bottles now on the size one nipple – any bottle suggestions are welcome.
As far as Gannon’s “screaming episodes” we know that when he gets backed up and bloated his bowels telescope into each other called intussusception. We’ve caught this on ultrasound but then it corrects itself. To prevent this he needs less air in his belly. Intussusception can be very painful hence the on and off screaming. There’s nothing really to treat this. If it doesn’t seem to correct itself or is inconsolable he needs a barium enema to treat and diagnose it. The key is to prevent as much air swallowing as possible.
Gannon CAN RESUME BREASTFEEDING. They HIGHLY doubt that he has a milk protein allergy and have dismissed Mayo’s diagnosis and told me to keep feeding him breastmilk which is so wonderful. Gannon has NEVER had blood in his stool or blood in his vomit which is key in diagnosing cows milk protein allergy. In the meantime I have two full cans of alimentum if you know someone who needs them.
I learned a lot this last week. Biggest piece of advice to anyone seeking care for their kids is ask for a referral to the university of Iowa. Don’t mess around with anywhere else.
That’s all folks. Thanks for all the love and messages and letters and support. If I haven’t got back to you I’m sorry it’s just been nuts.”
We are so hoping this is the end of the madness and everything is back on track. What a crazy time it’s been.
Thanks to everyone for their thoughts and prayers as Gannon and our family made our way through this. As Grandma, I’m still a little skeptical but I’m optimist too. Time will tell. All I know is that this little guy has made his way into my heart in the short six weeks he’s been here. Fingers crossed that this is the biggest scare he gives us.