If you’re coming into this conversation late, I have been diagnosed with Thyroid Cancer. If you want to read more about what’s happened with me, you can find past posts here.
Well there is a plan of action. That’s good news. I’m a gal that likes a plan and then I like to work the plan.
I will be taking the radio active iodine treatment but prep work and protocol needs to happen before I can actually take the pill.
It looks like my next month and a half will layout something like this….
Right now I was moved to a low dose of thyroid replacement medicine. I take it morning and evening. It’s one of those goofy pills that has to be taken on an empty stomach then no food for a half hour…then I can’t eat anything three hours before I take the evening dose. This has been challenging for me as I have to give the kiddos a snack but I can’t eat. I’ll admit to being a bit of a grazer. I really don’t eat all day with the kids but I’ve always grazed….the pills are a small inconvenience. I can do it easily enough. I just have to think about it.
On Easter Sunday I start the low iodine diet….right after I eat the ham. I’m not real worried about that. I’m not one that adds salt to things and we eat pretty basic without much processed food. I have determined that I will miss milk products the most. Butter and cheese are my favorites.
From here on is where I am suppose to become hypothyroid. It has lots of not so fun symptoms….These can include tiredness, weight gain, sleepiness, constipation, muscle aches, reduced concentration, emotional changes resembling depression, and others. Some people experience mild symptoms. Other people experience severe symptoms…I am hoping for the mild side. I feel like I am a little brain foggy already. I think that might just be the shock of it all still sinking in.
On March 25th I go back to the Lacrosse to see my surgeon.
Then on April 2oth I go back to Lacrosse. This time I have three appointments. I have to see one doctor because the dose of radioactive iodine is larger than most. Most are 100-mine is 150. I am getting a higher dose because my nodule that had cancer was larger. At this appointment we’ll learn about the precautions we need to take.
After that appointment I go for labs and then a Total Body Uptake and Scan Dose with Nuclear Medicine. Here I have to take a really small dose of radioactive iodine and then I am scanned and imaged to find how much and where the thyroid cancer is. The type of cancer I have travels via blood so it’s likely that I have some in other places besides my neck. This also makes sure we have a proper does of radioactive iodine.
The next day I am back to Lacrosse. I have another Total Body Uptake and Scan Dose with Nuclear Medicine. Then a visit with my regular doctor to get the final details figured out…then time to take the radioactive iodine. From there I need to stay in the hospital for a couple hours to make sure I can keep the meds down. Once we’re sure I can keep it down, then we can go home.
I’m then home for a week-mostly isolated. We have learned that Hubby can stay at the house with me but there are some strict guidelines we’ll need to follow..then back to Lacrosse for another Total Body Uptake and Scan Dose with Nuclear Medicine. This will tell if the treatment worked…it’s one of those days that I’ll be hoping for immediate results and will have to practice some patience.
There will be some follow up appointments after that but for the most part, that’s the brunt of it.
Having the appointments in place has been really good for all of the family….like I said at the beginning of this post, we like a plan…and then like to focus on following it. In the meantime I’m doing all I can to just feel normal. Normal and boring is good.