So many of you left kind words on my morning post about wishing me well on my tests and doctor appointment today. I ended up getting back just in time to beat the regularly scheduled blog post and thought I would give you an update and not make you wait until tomorrow. I know you all hate waiting as I do.
Kalissa drove me over to Lacrosse….and what’s a trip to the doctor in Lacrosse without a picture of the bridge over the Mississippi. It’s kind of my tradition to take one.
Here we are. Although Kalissa couldn’t go to my appointment with me, it was nice to have her with. She happened to have an orthodontist appointment on the same day.
She stopped at Once Upon a Child and bought Carver summer clothes to kill the time waiting for me.
My first stop was to get a Chest CT scan. That took about 10 minutes and then it was on to get my PET scan.
EXACTLY one year ago today I sat in the same waiting room in the same chair watching this very same clock as Kramer was getting his PET scan. I’ll admit…it was a tough moment. As that’s the day we learned he only had a short while to live as his PET scan showed he was full of cancer.
I couldn’t help but wonder a bit what my result would be. How ironic that I’d have a PET scan exactly one year later.
Having a PET scan done isn’t hard…fun no, but not hard. Don’t be afraid of them is it comes your time to get one. It’s a simple IV injection, a nap (yes seriously a 45 minute nap) and then the scan.
The patient lies on this bed and the machine takes them into the tube. I got a strap around my head, chest and feet so I couldn’t move. I was in the tube for about 25 minutes.
After that, I went to the waiting room of my doctor to meet with her. I was early but she got me in right away.
Here are the results:
Nothing. I know that’s kind of frustrating…but seriously there was nothing.
In a previous Chest CT scan there was a tiny nodule in my lung they were following. It’s gone. People can get them from a cold..so it disappeared. I do have a new one in my right lower lung that is 1/2 cm. They aren’t concerned about it at all as it could easily disappear too.
The PET scan showed nothing. No cancer.
YET, my blood work shows cancer. So, what do we do? Here’s the plan:
I am being referred back to Mayo Clinic. They are going to see if they can do anything there. My insurance is an issue if I go there though as it’s “out of network”. We’ll see what they find out….likely nothing again…but we’ll see.
I will likely go through the icky diet and full body scan and will likely be treated blindy for thyroid cancer with another dose of radioactive iodine.
but…that’s all up in the air until Mayo has their turn at me.
I guess there is a name for a case like mine. It’s called Incomplete Biochemical Response. That means nothing shows up on imaging but I have an increasing thyroglobulin tumor marker.
So home I went with no real answers. It was all anticlimactic. I do have to say, as disappointing as it was to not know anything, I’ll take this news over the news I got with Kramer a year ago on this day. He was loaded with cancer…and feeling terrible.
I feel normal…I did talk to her about my medicine and we’re doing a little tweaking with that. I unexpectedly lost 12 pounds. If you’re diabetic, and you weren’t really trying to lose weight, that’s a whole thing. I do attribute much of it to change of lifestyle in general…but something we need to keep an eye on.
So on the way home I stopped at WalMart pharmacy. Remember all the trouble I had with getting my Jardiance three month ago….and it went from over $1100
to $260 for a 30 day supply
to $230 for a 90 day supply
to $150 for a 90 day supply….(read about that HERE)
Well today it cost me NOTHING. Go figure.
Once home I got a note from my doctor. I was to call to Mayo Clinic in Rochester and make an appointment. I went through a long process and finally got to the scheduler. She told me the first appointment was August 4th. Well that frustrated me to no end so I told her I wouldn’t accept that date. Instead I would call my doctor who referred me and have her office call to schedule the appointment for me and they would likely get a quicker appointment….and just like that, the a June 29th appointment opened up. AMAZING how that worked. I didn’t mean to be bitchy but seriously, I was put off by covid and my cancer more than doubled. What would the number do by waiting another 10 weeks. UGH.
From there it was a call to my insurance. Mayo Clinic is “out of my network” so there was a whole line of paperwork to get that approved too but it’s started.
So now we wait until the 29th….I now understand why my surgeon told me that thyroid cancer is a good one to get if you have to get a cancer but it really nickels and dimes a person to death.
I’m happy and feel well and think in the end…that’s really all that matters. I’ve waited to see doctors…I’ve waited for results….I can wait again.