So today was doctor day for me. It was quite the day all around. Kalissa, Gannon and Kayla went with me. Kelli took Kramer to his radiation appointment.
For us, this is a trip from NE Iowa into Southern Minnesota, to Rochester, MN. One of the towns we go through it Spring Valley. If you’re a Kramer, Spring Valley means the bakery.
Everytime we go to Rochester we purposely leave a little early just so we can stop at the bakery.
Spring Valley also has some awesome old houses. This one is Kalissa’s favorite. She loves the black and white. She has vowed should she ever reside her house, she’ll definitely do it in this color scheme.
Gannon was EXCELLENT….not a peep out of him. (Promise…I’ll do an update on him soon)
The waiting room was PACKED…this was for the lab.
I got a student for the blood draw. He missed and then the “teacher” had to DIG…It wasn’t terrible…but we didn’t get in at the right time so we were a few minutes late to the next appointment which was a neck ultrasound.
I checked in at the kiosk and then started waiting again. We waited a bit and then we started wondering why I hadn’t been called back. Kayla went into the check in and asked. It turns out it didn’t check me for the ultrasound, it checked me into the chest CT scan which was supposed to be after the ultrasound.
We waited a bit more and then I got called back.
It was uneventful. When I got back to the waiting room, Kalissa was all smiles and had her phone out to show me a picture she took of Gannon while I was gone. This is the picture.
The story she told me was this:Gannon had farted SUPER loud….and then he was all smiles.
The lady in the waiting room in the sitting area across from them said, “Oh my, was that the baby?”
Yes…yes it was the baby!!!
From there…I was taken to a different area because I was way late for the CT scan appointment. It turned out all okay.
We tried really hard to make fun in a bit of a stressful day….the girls and Gannon were great.
From there it was lunch and a quick bit of shopping then back to Mayo for the results.
I’ll admit to being a bit impatient. So a couple times while we were waiting I checked my phone to the patient portal to see if any test results were in. I did it again as we were waiting to see the doctor and that’s when I saw the results of the Thyroglobulin Tumor Marker was in. I looked and there it was…. UGH. My number had doubled. And that’s when they called me back.
Well, of course, my blood pressure went WHAM. So then the person who checked me in was all worried about that. UGH.
From there Gannon provided the comic relief we needed. He was hungry. We had a area in our room that could be curtained off. We had a young guy as the person who was checking me out before the doctor came in. Kalissa could see he would be uncomfortable with her publicly nursing so she said she was going to go behind the curtain and nurse Gannon.
Well Gannon was LOUDLY sucking and smacking. It was hilarious as we could see the guy visibly being uncomfortable. Gannon would smack louder and louder. Kayla and I were stressed…it was funny and it was all we could not to laugh.
The buy left the room shielding his eyes from the curtain and Kayla and I started laughing out loud once the door closed. Oh my. Seriously…it was the relief we needed.
After that cleared my doctor came in. She said there was good news and bad news. I’m still a little confused over what she thought was good.
So…this is the long and short…
-My tumor marker doubled
-The things they thought were in my lungs aren’t there anymore
-There is something in my upper right lung that they think is likely from a cold that they will check again next time
-My ultrasound checked out okay
They don’t know where a cancer is. They think there is something somewhere but don’t know where. So..next up PET scan. They don’t really have any openings until Tuesday morning at 6am…so they do have a checker program. People can go, sit in the waiting room and can hopefully be worked into the schedule. That’s our plan. We are doing that tomorrow. We’re arriving early and hopefully can get in. If not…Tuesday it is.
My doctor is not super on the bedside manor. She tries. She’s okay…but I really don’t love her at all. She seemed dismissive that were alarmed that the tumor marker doubled. She said that I wasn’t symptomatic so if they do find a cancer, there is a chance that they would let it grow as the treatments may be hard. WHAT?? That’s weird to me.
The sense of urgency was ZERO. I’ll admit to feeling a little frustrated. I was honestly ready to ask her, do you want a cancer growing in you and randomly “hanging out”? I am an adult and didn’t. I do admit to feeling some justified frustration. I admit to feeling angry. I’m going to re-evaluate everything again when I’m a little more rested and and further away from the disappointment of it all. I so wanted to be okay enough at the check up that our family didn’t need to worry about me to.
That wasn’t to be.
I know many of you will say, get a second opinion. We have already talked about that. If they say, “Just let it grow” we’ll check into something else.