Remember back in June, I had a doctor’s appointment. It had sounded like everything was okay but my bloodwork wasn’t back yet. The doctor had sent me on my way with the plan for me to come back in 6 months. Then on the way home, she called me and said my bloodwork thyroglobulin tumor marker had gone up higher than expected so she wanted me back in three months and wanted me to have a PET scan.
For those of you who are new here. I was diagnosed with thyroid cancer in 2016. I had surgery to have my thyroid removed and underwent Radioactive Iodine treatment. The hope was that would be well…but it isn’t.
I was good for a year but gradually my blood test numbers have been slowly creeping up. I hate to complain or even talk about it because what I am going through is NOTHING compared to what other cancer patients go through. At this point, there has been no chemo. No radiation. Even if things do go bad there is a high chance that I’ll never have either of them. Still, it’s annoying.
The thought is that the cancer has moved to my lungs. It supposedly is slow-growing or at least is supposed to be slow-growing. Who knows…and that is what was supposed to take me back to the doctor yesterday.
That didn’t happen. I have had the appointments for a couple of months. Then Friday I was called and told insurance wasn’t approving my PET scan. After numerous calls to my insurance and to the doctor plans changed and at 5 pm on Friday when scheduling closed, they decided they would go with a chest CT and abdominal CT scan vs the PET scan. But, they had to be approved by insurance.
That wasn’t helpful to me. No appointments were scheduled. I had already taken Monday off…now I couldn’t schedule the appointments. No one had any idea if they would be able to get the appointments scheduled on Monday. UGH.
I was supposed to be at Mayo Clinic (two hours away) at 8 am for a blood test. I’d have to leave at 6 am to get there in time. There was no way to schedule appointments at that time…so everything had to be canceled.
I talked with my childcare parents and ended up doing childcare today. Of course, Mayo Clinic called at 8 am on Monday telling me they could schedule appointments as insurance did approve the CT scans…she said she could have likely gotten me in for them that day. Well, it was too late. I was two hours away and now had childcare kiddos.
On top of all of my own cancer stuff, yesterday was also the anniversary of my niece’s death. She died two years ago from breast cancer. There is nothing like the anniversary of a death from cancer to make a person realize that I could be going down the same road.
I can’t tell you how many times Jody and I would call each other on the way to appointments. We always called each other right away with results. We shared something that few others in the family and friends understood as we both understood with our cancer diagnosis. It was so good to talk to someone else who understood the lingo of cancer.
Monday, with my problems with insurance and appointments, was a day I would have for sure been calling or texting. She understood the frustration of all of that. She was someone who I could vent to and she’d love me just the same.
Going through all the appointment/insurance junk yesterday on the day she died was one moment like, she’s with me and cheering me on and the next like cancer can kill and she’s proof. I did everything I could to try to be on the “she’s with me” train of thought.
My niece sent a couple of pictures that did me some good. I hadn’t seen these pictures. Here is Jody meeting Georgia. It was a good day even though Jody was sick and in the hospital. Jody had a great smile even sick.
Jody and Kelli both dealt with infertility. They bonded greatly over it and Jody completely understood the trouble Kelli and Jason went through. She was just thrilled for Kelli to have Georgia.
Sadly Jody died on the birthday of her triplets which was two years ago yesterday.
My appointments are all moved to September 23rd, I’ll tell you what I learn. At least at this point, I know insurance has approved the appointments so that is one frustration I won’t have then.
I’m trying really hard to remember and see the good and not think about insurance/appointments/cancer. Yesterday wasn’t the best day.
I’ve learned on those not-so-good days to give myself a break. Sewing, stitching, and get lost in an audiobook is just what I needed…and just what I did.
Today will be better.