Well..I have medical news on TWO fronts. Kramer first:
This weekend was tough…Monday was tough too. We talked to the doctors about it all. They asked about symptoms. We answered.
We are to the point that Kramer can no longer eat solid food. What has happened is that the radiation hits his esophagus and has given it a “sunburn”. It makes swallowing food very difficult. Normal food is more of less out and he’s living on cottage cheese, yogurt, puddings, Boost drinks and other similar items including McDonald’s chocolate shakes.
Food was a big way of life for him…for all of us so this has been hard but he’s been a trooper. We asked how long this could last. We were told that in would likely last a few weeks AFTER radiation is done. The last radiation day is May 8th…so asked if he’d have some relief by June 1st…and the answer was yes. That is a light at the end of the tunnel but seriously, that’s a long tunnel.
They gave him fluids with his chemo today…no surprise, with the swallowing issue, dehydration is now an issue too.
Our biggest concern of the day is headaches. Kramer has had a lot of headaches through this whole ordeal. They are “rams horn” headaches. They start in the back of his skull and radiate around to his temples. He has them regularly. Last week when he got steroids on Wednesday and Thursday, the headaches were gone. Friday and over the weekend, the headaches were back. This has prompted the doctors to order a head MRI. They was to do it to make sure that there is no brain cancer. Yes. We had one before but that was back in February. We were told things can change. We were also told that chemo even if given for lung cancer will blanket the body but not the brain. So…that is Wednesday’s added event, the head MRI.
Besides all of that about three medicines are either going to be used more of or less of. I finally told the doctor, this ALL has to be written down. This is why you should NEVER let a cancer patient go to appointments by themselves. NEVER!
Also…Kramer isn’t always as truthful as he should be with doctors. They asked if he was dizzy. He said only when he gets up. That is not true. He’s dizzy much of the time. He’s compensated for it and now doesn’t realize he is. It has become his new normal. Then I tell the doctor no and give examples and then Kramer says…Ya. I guess I am. It’s so hard. I almost feel like I am betraying him in the doctor’s office. AH!!
Chemo and radiation are done. As of me writing this, we have 12 radiation and 2 chemos left. When he got this last radiation the tech said, “Ah, you look pretty tough.” He does. They joked about it and then she said, “Ya these next two weeks or so are going to be really hard on you.” UGH. We know that and she didn’t say it meanly but UGH. We were kind of hoping this weekend was only a setback. We’re beginning to wonder if it’s the new norm.
Now, my report…I’m warning you. Grab a cup of coffee. It’s a saga too…. Continue reading